We’ve been a little anxious over here the past 5 days awaiting to hear a decision from Walker’s specialist in Minnesota about his Esophagram results. Radiology at Devos confirmed his stomach wrap (fundoplication) was too snug, and fluids weren‘t passing through like they should. So imagine our anxiety thinking we were heading back for surgery over the holidays. Dr. Manini called me this evening....and my heart dropped.....I was nervous to hear what he had to say. BUT........he said, ‘You are staying HOME for the holidays, and will remain HOME until Walker starts showing symptoms.” BEST NEWS EVER!!!! After reviewing Walker’s test results, for ONE....they shouldn’t have done the majority of the test laying down. We KNOW that his esophagus muscles don‘t squeeze or contract to push food or fluids through the tube, he strictly relys on GRAVITY to move his down. The few slides taken towards the end of the procedure while standing do show the fluids are passing through to his stomach, they travel slowly and take time BUT they GO THROUGH! The stomach is too snug, but for now isn’t constricting food from traveling through to his stomach and Walker isn’t showing any signs of symptoms~ throwing up, choking, trouble sleeping, etc. He does cough occasionally as after watching the slides, the fluids pool in his esophagus until they work their way through. For now, if coughing is all we are dealing with, I call that a HUGE WIN! Hell yes!! They don’t want to touch him or create any more scar tissue or problems if he is living ‘normal.’ I completely agree! Let’s leave it alone until maybe someday we see signs of symptoms returning. We will touch base in the Spring with his doctor and take it from there! It feels SO good to know my boy doesn’t have to go through a 3rd surgery over the holidays and we can enjoy being home and TOGETHER! 2019 has been the toughest year of our lives. We are ready to enjoy these past couple weeks and RESTART 2020 FRESH and symptom FREE!!!! We truly appreciate everyones kindness and generosity throughout his journey! It’s not OVER.....but for now I’m hopeful we can just BE! Just BE a family, just BE living life normally, just BE happy! He’s been so strong and truly dealt with everything so positive! Walker James, forever my inspiration, forever my Warrior boy, forever the kid who has made me stronger, prouder and so incredibly blessed to be his MOM!!!! 💕
Happiest of Holidays to EVERYONE! We hope you are blessed this holiday season and have the BEST CHRISTMAS yet!!!!
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