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Home is the NICEST word there is!

Happy Saturday.....woke up at HOME, with all my boys here❤️ Yesterday morning W slept in. It felt good to be in a hotel bed....with no IV, no nurse coming in every few hours to check vitals and no BRIGHT LIGHTS! Mom and I scarfed down some breakfast before he woke up and relaxed! He was only allowed juice, Jello and popsicles so we felt bad eating in front of him! We packed up and hit the road at 9am. We decided to drive through because we were all ready to just be home with family. We packed a little cooler of jello and popsicles for W. He watched movies, took naps and played on his Nintendo Switch. We stopped to get gas, and shop at a little Amish Market to stretch. Then onward to Michigan! Coming through Chicago I somehow took a wrong turn and ended up going straight through the city instead of going west through the suburbs. Helloooooooooo traffic! It’s good to see you again. (For those that don’t know, Jason and I lived by Wrigley Field for 8 years & Walker and Bryce were both born downtown.) We were bumper to bumper for MILES AND MILES! So that extended our trip quite a bit. About 7pm we made it to Paw Paw, Mi! Said HI to my step-dad and dropped Mom off. W and I headed to GR! The other boys weren’t home yet, they had to head to Lansing to pick up Cash from my In-Laws, so I unpacked and got everything put away, and when they came home...it was pure JOY to be reunited and together again. Boy does it feel good! For the next week Walker is on a liquid diet, I will keep him home only one week to heal. He feels AWESOME! Like....completely normal, no pain, NOTHING! It’s fantastic! But....he’s not allowed any activity for 4 weeks....walking ONLY! No hot tub. They do not want his blood pressure elevated at all for risk of bleeding. We will follow this to a T, no matter how hard it may get for him to stay still and on this limited diet. We want great results this time and no more procedures or surgeries for A LONG TIME! In a week he will go back to school and start a MUSH diet. Then in 6 weeks we will get another Esophagram to determine all has healed and things are progressing as they should. At that time, we will determine if we are leaving the stomach wrap alone, or will need another procedure to loosen that. For now we are enjoying being HOME & all TOGETHER. Today started basketball showcases. Jason is coaching, so W headed with him to watch since he can’t play yet. He will only miss about a week of practice and then can join in! Again, we are OVERWHELMED with everyone’s messages, love, support, kindness, donations, etc. It’s made our journey much easier to cope. It’s not OVER, but hoping this surgery can get him symptom free for many years to come! I will continue to blog, share, spread awareness for this rare disease. Still too much is unknown and we need to find out more about it so those with the disease can live better lives.