As we navigate the next 11 days awaiting to travel back to Mayo Clinic to prepare Walker for, yet AGAIN another surgery, we want to continue to raise awareness for this rare disease. It makes my heart happy ❤️ (and sad) when someone reaches out saying they too have been diagnosed, OR our story has made them realize they have possibly been misdiagnosed and are scheduling an appointment to get some answers. We hope by sharing our journey, it creates a network where we all don’t feel so alone AND help one another navigate and cope with this disease that is still so unknown. Achalasia is a rare, incurable and progressive esophageal motility disease with only palliative treatment. Achalasia sufferers have damage to the nerves of the esophagus which makes swallowing and the passing of food and liquid into the stomach extremely difficult. It is of unknown etiology. Please continue sharing WALKER’s journey! We have had an overwhelming amount of people reach out to us, THANKING us for being so open and sharing our experiences. We hope to create some buzz about Achalasia and MAKE A DIFFERENCE in others lives. #WalkerStrong #AchalashiaWarriors #Unite #Share
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